I’m a day late because between my crappy ankles being crappy and getting sprained again (it happens at least twice a year for me – hypermobility fun times) and a 12 hour day at work, I was exhausted and spoonless.



No longer will a person’s beloved be forced from their ICU room. No longer will LGBT couples have to fear one of them becoming homeless if the other dies. No longer will homophobic family members be able to over-rule partners and kick them out in a crisis. No longer will LGBT couples have to carry around legal documents in case of emergency, as a constant reminder of their second-class status. No longer will LGBT couples have to deal with clueless straight people saying, “Marriage isn’t that big a deal. What do you need the dress and pomp and circumstance for? Just love each other and that’s enough.” No. More.

Because marriage equality is recognized now, in the US.

Oh, happy, happy, happy day.

And a long time coming.

On the topic of the Charleston massacre

As I said on Tumblr, white people must not attempt to deny the racism of that action. White people must not scapegoat people with mental illness and refuse to take a good hard look at the culture that bred that hatred in the shooter. The Charleston massacre was not about mental illness, it was about racism and white supremacy.

Additionally, I would strongly recommend that anyone with the resources to do so donate to the families of victims and to the survivors, so that they do not have injustice compounded upon atrocity, and do not have that horrible crime ruin their finances in addition to hurting them, traumatizing them, and/or killing their loved ones.

Beyond that, this is not a time for me to be talking. Have some links to stuff written by people who should be talking at this time:

A final point: If any black person wants me to signal boost anything right now or wants to use this blog as a platform in any way: leave a comment or get in touch by email (my email is ischemgeek AT gmail DOT com).

Respect the “can’t”

People with disabilities and chronic illnesses will often say we “can’t” do something when technically, we can, but not without severe consequences we’re not willing to pay. Since, in my experience as a person with chronic illness and disabilities, explaining that yes in theory I could do the thing but the cost-benefit analysis does not work out for me usually results in people trying to pressure me to do the thing despite me just explaining what it would cost, I try to shut down that line of pressure by saying “can’t” instead of “shouldn’t.”

Doing this is not dishonest. I can’t do the thing, in the sense that abled people are thinking of. I can’t just pound it out and move on to the next thing. It will take too much out of me. If I do it, my day is basically over, and maybe my next few days or weeks will be wasted in recovery.

But, abled people, when they find out what I meant by the “can’t” get outraged at it, and seem to think I’m lying about my abilities. And then my can’t backfires, because they take every can’t as a “shouldn’t.” Alternatively, abled people who fall into the “The only disability in life is a bad attitude!” camp will take every “can’t” as a “shouldn’t” just on principle. That’s when the trouble begins.

Because then they start viewing every “can’t” as an obstacle to be bulldozed over. “I can’t go to that party, there will be too much smoke.” “Oh, come on, an hour can’t hurt!” “I don’t want to have an asthma attack.” “Can’t you, like, premedicate or something? You said you do that before exercise.” “That’s different – exercise improves my asthma control. Smoke will only worsen it.” “How do you know? You might get desensitized from it. And besides, it’s only an hour.”


Any reason I give, no matter how well-evidenced, is hand-waved away dismissively, and challenged with two or more “reasons” I should do it that are often not supported by anything except they want me to do the thing.

If you do this, there are two major problems with your conduct: Firstly, you’re assuming you know more than a disabled or chronically ill person about their disability or chronic illness. Unless you’re a leading expert in the field of their illness or disability, that’s is vanishingly unlikely – most people with disabilities or chronic illnesses have to become self-taught experts on our conditions, because medical professionals often think they know a lot more than they actually do about us and we have to be on our toes to challenge bad ideas (like putting a severe asthmatic on the lowest possible dose of Flovent because when well-medicated and between flareups, my PFTs are quite a bit better than average. No, the fact that I’ve lucked into avoiding permanent lung damage so far despite a long period of brittle asthma as a kid is not a argument for reducing my med load so drastically that I’d get that permanent lung damage. It’s an argument against it).

Secondly, you are not respecting the person’s boundaries and agency. They think doing the thing is a bad idea and they don’t want to risk it. Respect that. If, frex, they’re unfamiliar with the fact that the person holding the party is getting their place cleaned and making it temporarily into a non-smoking zone for the non-smokers in the party, by all means bring that up. “Oh, there won’t be smoke there! [Host] is going to clean their carpets and wash everything down and make people smoke outside so you don’t get hit by it. Would that work, or will there still be too much smoke in the upholstry for this week?” is a fine way to bring up info. Not fine is turning that info into a guilt trip: “Oh, so I guess [Host] cleaned their carpets and washed everything down just for you for nothing, then. I’ll tell [Host] they wasted six hours. God, you’re so ungrateful.”

But lacking a situation where the PWD does not have perfect information, respect their “can’t.” You don’t know what’s going on in their body this week. Maybe their allergies are really acting up, and with [Host]’s cat, they’re guaranteed to be up all night coughing. Maybe they have arthritis which is flaring up and [Host] lives on the third floor of a place with no elevator. Maybe they’ve been up every night this week dealing with complications of their condition or disability, and really just need a good night’s sleep.

You don’t know. So respect the can’t.